Is The World Watching????

This morning around 10:00 a young man called me and wanted advice on how I thought the government was going. Poor soul, I am sure he was not prepared for the conversation that followed. He ask me what was the one thing he could do to make me happy with my government and my answer was.... leave my social security alone. Don't be thinking it can in anyway pay off the deficit and while he was at it leave the seniors alone. Was he aware that there were seniors out here taking their medication every other day because they cannot afford it on a daily bases or because they were sharing their medication with someone who does not have or cannot afford medication. This is not right. This is America. Supposedly the world looks up to us but our heroes are being left behind to fall helplessly through the cracks and who cares. These same seniors are the founders and first caretakers of our country. We could get by on little just to be able to say we were Americans. We should not have to want for a thing in our old age we made this country. Does it make since to take from some one who already has nothing to pay off a deficit that they didn't make in the first place. Why is the person, much younger and with an income(INCOMING MONEY)not made accountable.....it looks like it is because we are not able to speak up for ourselves and who cares we are close to dying anyway....Don't think so. I plan to be around a long time and I don't like the idea of someone who spent his life time in the halls of Congress deciding me and my friends should spend our remaining years strapped for funds. We are the foundation of this country. We can and will make due BUT we shouldn't have too. I have worked HARD ALL MY LIFE to get where I am and I can go without better than most. I can stretch something to eat and make it taste good far beyond the limit..I know what living on the high side and low side and totally without side is. Everything going on in this United States, today, is about the almighty dollar. It appears to me no heart is involved. Is the World watching? Hell yes they are. Am I scared..Hell yes I am...How far away is 2012 and what are we doing to stop the tide.....looks like to me we are just pouring oil on it...Sorry, in some circles this is called "Pokie on a box." If I have offended I'm sorry but enough is about to be enough...love always Pokie

Luggage or Treasures

I'll tell you right off my symptoms are excellerated today and for what reason I do not know. I am taking my pd meds amd Epilepsy medication as directed, which is so odd for me and really feel lousy. I can attribute this to one thing, my brain is having problems processng all I am sending it's way. One travels life with so much excess baggage and it's contents will keep you from ever enjoying any of the special moments you incounter. Yet I am finding out your brain can also lead you to believe one thing when quite the opposite is true. How do you ever survive this way? How do you know when you are actually loved or is your brain just tell you this out of need? Maybe you think you have had enough of something and you haven't...this could keep you eating all your life. Tomorrow I am going to have to leave this very much behind or it will drive me crazy. This is one of those things, that when I pass, God will have to set down and explain to me. For one thing I feel no remorse for believing with all my heart and another for carrying it through my whole life but I am angry that I didn't realize it earlier. I know this seems like so much gibberish coming from a vey confussed mind but know this. This baggage might have been and still could be a Pandora's box or a place you go on a rainy day to play in a field of clover with the butterflys. Tears have a speial ingredent to heal. Heal what? Another thing I don't know...but it is an excellent way to fall a sleep and DREAM.....and PRAY. both of these I will do tonight and maybe, just maybe, tomorrow will come up clover and butterflys...love Pokie

New Signs I Thought You Might EnJoy

at the very bottom of the second sign THE BRIDGE IS OUT IN TINY LITTLE LETTERS

How's your garden going?

When Joe Parkinson's came knocking at my door four years ago this is the thing he stole from me that hurt the worse.....my ability to put out and maintain a beautiful and weed free garden. There is not one thing about gardening i don't like except deer flies and deer ticks. Deer flies can be stopped with excessive bug spray and deer ticks can be detoured but not stop ed by long sleeves and long pants with duck tape wound with the sticky side out. You'd be surprised how many of these pests you can catch and dispose of this way except you could have died of heat stroke today with all that on since the heat factor was 108. I have passed my garden spot on to my son-in-law and his friend. Tonight they brought me cabbage and they are picking green beans, peppers and cucumbers. When the tomatoes come on in full force, the freezing and canning starts for the winter. All my kids and I have a deep freeze and I freeze more now than can. The weekend I will be going to my first class reunion. It not theirs but mine. The first I have attended in 45 years and my home town is in the boot hill of Missouri which is peach country this time of the year. So, on my way back , in request from my grand kids, I am to pick up "forking peaches", which is peaches in heavy syrup in a easy to hold on to container because you eat them while still frozen with a fork in little pieces. Gives you brain freeze every time but they love them. Joe thought he had really pulled something off when he made me exit the farm chores I have always loved so much but little did he know he can't take them away from me. on my last days the memories will still cause my eyes to twinkle and shin...love Pokie

Yesterday When I Was Young...Glenn Campbell

http://blogger.com/blog-formatting.g?blogID=7105864728904284820Blogger: Today With PokieToo and Parkinson's Disease - Formatting Settings Dearest Bob(Bandido One),Thank you so much for forwarding this to me. though little sadder than I let myself go, it is beautiful and good thought for a warm summer night and a glass of wine...love ya Pokie

It's a Beautiful Day in Illinois

Saturday it is and one more day and it is rest day but one more day and my grandson Ayden will be two. The day he was born I could barely lift my arms to hold him and now we romp and play in my power chair. He is the youngest of my grandchildren and the only one to have never known me without a limp or obviously suffering pain but he handles it as only he can. Last week, out of the clear blue sky he lifted my feet and put them on the foot rest on my chair as he sat and looked up at me and smiled. Somehow at his early age he knows. I had started out to write about the past and as the words hit the page I realized nothing is about the past anymore....it is all about the future. If that future be one hour or one day, one year or a decade , why not cram every happy thing you can in to it and enjoy? Why dwell on what was? We as a society and we as a community of Parkinson's patients experience loss daily. There is no happiness in loss......SO..... stop look around you for a bright color , a ray of light, someone giggling and go in that direction instead of backwards. I have been thinking it over and my thoughts are to live the remainder of my life as simply and childlike as I can. I think my grandson has cornered the market and getting just what he needs to live on and be healthy. He lives not in excess or hate and showers love where ever he goes and so on this almost Father's Day I'm going to say, "Thank you Matt for giving me the gift of your son , my grandson Ayden," and "Thank you for all the years of laughter and joy you have brought into my life........always Mom

Happy PD New Year

Most people celebrate their New Year in January, mine is May 1st. At least since the first year I attended the Parkinson unity Walk in New York City. I come home and regroup and try to imagine what it is I must do in the coming year to out do what I have done in the previous year. My whole life centers around Parkinson's at the minute. Not because of the pain or discomfort but because of my obsession to find a cure. I will never personally find a cure but I dream of bringing one person from point A and one person from point B and a cure is found...Not for just PD but all Neurological Disorders. I watched St. Louis draw in 71,800 people for the Koman Race for the Cure and netted over 3 million and I say why not us. They started with 200 and look what 10 years have done. The Unity Walk pulled over 15,000 people and netted over 1 million and this was our 16th walk but LOOK OUT NEXT YEAR. My little team collected $600 the first year and and came so close to $14,000.00 this year. Every penny of that went to research. Never in my farthest dreams would I have imagined Kimberly Clark would be asking me to blog in behalf of their new program "Not On My Watch", helping to stop the spread of infectious disease in hospitals. I have lost very close friend this year as I know you have too who went in for elective surgery and never made it out because they contracted a deadly infection while in the hospital. Check this out it might save you or a loved ones life. Something is being stressed to me from an unknown source right at this moment. No one is useless. till the very last moment we can still communicate with our eyes. Just because you have been diagnosed with a chronic disease, don't give up. Find a quiet spot and give some thought to what one thing you might do to help the community, whether it be the cancer, Parkinson or whatever community...and do it regardless what those around you say. The first thing you will hear is you cannot do that because you are too sick.....the less you do the sicker you will get and the more your mind will slide...Tell your mind it's twenty and see if it will go along with it..love ya Pokie

Healthcare-Associated Infection (HAI) Not on My Watch

"Not on My Watch"

I know I promised to back off for awhile as I am finishing the quilt project for PDF BUT alas Kimberly Clark sent me some very interesting information yesterday I would like to pass on to you. Did you know that an estimated 100.000 deaths have occurred in the U.S. from healthcare-associated infections. This was reported in a Center for disease Control (CDC) report published March April 2007. The risk of acquiring these infections in developing countries is 2-20 times higher than developed countries. "Until recently , a lack of HAI reporting requirements for health care facilities has contributed to less-than-optimal emphasis being placed on eliminating the sources of health care associated infections. However, growing public anxiety regarding the issue and resulting legislation on state and local levels demanding accountability is serving to accelerate initiatives to combat HAI's. To learn more please visit www.haiwatch.com." Now, let's go to my words. In an earlier time and place a hospital was a safe place you went to be healed BUT in the past year I have lost countless friends who entered the hospital for elective surgery and I never saw them again. Gallbladder surgery..she died. Lap band...she died. There is a total panic among middle age women in my area about being alone and facing health care crisis. I am attaching a video I hope you take the time to watch and more important, the next time a health care professional touches you ask them to scrub OR hand them a sanitary wipe. Don't be shy. It's your life and well being. love Pokie

May May Ali's PSA for the 2010 Parkinson's Unity Walk

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