Thank you Dear Jesus......

Thank you dear Jesus for this day I pray with the gifts of food and clothing and a place for my daily rest. Thank you for giving the year that has just past, so filled with good memories of friends that I have. Thank you for friendships that have formed on all sides. Thank you for my walking, no matter how crude, you stayed beside me and we got through.For sunshine and fresh air so crisp and so clean.I thank you sweet Jesus for this day I pray.So thankful and I am for the gift of new life. For Ayden, (Little Jesus) who was sent to show the way. His smile and his laughter and all his sweet ways, that calm us and remind us of the mission we have.On this day of Thanksgiving in this wonderful land, I thank you sweet Jesus for making me part of the plan. You gave me new projects to lead me from the pain. Each day has been a challenge a mountain to climb. When I think I can no longer respond, you gently remind me that my day has not come. A verse or a penny somewhere do I find and angels surround me and no longer do I wine. Sometimes I write poems and sometimes some verse but today I'll just leave this quite in the reverse.....so you can just ramble and pick as you will from my Thanksgiving thoughts for this Beautiful Day.

such special times

From October to April last year and this I posted on Patientslikeme.com hourly or daily, whichever came first, but in that span of time little did I know the friendships that were to be formed for me. I watched these ladies from a far and read everything they posted and admired them so. Following those days so many things came into play....the Unity Walk, Nicole had Dbs, and I found out what great poetry and writings Marian and Karen could produce. I met Marla at the Unity Walk as well as Tom and Dixie and the rest is history. We are watched from afar and I'm sure one would wonder at what an odd combination we make but our feelings run very deep and we are very protective of each other....A closer bond I have never felt with anyone and take that and multiply once again for each of them. I flew out to meet Nicole , Karen and Marian in October and each meeting was as before....as if we had always know each other. The coffee cup , above, was a symbol of such a playful time in our history. We use to hang out on Chatzy in the early morning and pretend we were in a coffee shop for morning coffee...hence "Coffee With Pokie". Karen sent us all a cup that to this day sits next to my computer. We would all get signed in and get our drinks and raise our cups in unison to start our day. I miss those days but I understand their passing. We were kids at play then. Skipping down the lane taking each day at a time and holding each others hand. Then all of a sudden Truth stepped into our little fun house and nothing has been the same except our undying love for each other. Karen's diagnoses of MSA and the sudden noticing of our friendships brought the world and all it's horrible things to that coffee shop and it slowly faded away. God says you should not put great stock in your possessions but that coffee cup could just as well have been made of gold. Inside it says"It's your Day"..... This morning I raise my cup once more to you girls...the members of the coffee club..Here's to you "It's Your Day"....love pokie

Celebrating Sunday Everyday

Parkinson's Disease has done some very unique things to my life, quite a few of which are awesome and these two are the most AWESOME ever. At a wedding reception this teenager from Hawaii held up two glasses and and a bottle of Wine toward a woman he was immediately drawn to....and i can just hear her saying who me though Al never probably stood a chance in the plan of things. I'm sure they fell in love before they ever met. That's the way soul mates do. And now so many years later, they still clown and play around each other as if no time has passed at all. They welcomed me into there home the 4th of October without knowing me except from the internet and talking to me on the phone and though they are in their fifties and and I am in my sixties, we played like a bunch of young school kids the whole time I was there. If I were to give anyone a gift for Christmas, I would give the gift of two friends so dear. They don't always agree but they always make up and they never hate. They laugh and keep each others lives on track while keeping everyone else's lives on the straight and narrow. Karen has the ability to mother without nagging and Al is standing in the background pulling it all together. So today I wish to embarrass Karen just a little, since she is about to be a grandma once again and the last week has been pretty rough, and say on God's Day I thank you for being my friend and when I read your blog on Myspace last night, I was so proud and I was moved to my core.www.myspace.com/btrflynana.....Read it I challenge you, you'll be moved