Saturday, April 16, 2011

A Year Ago and Today

I openly admit to the fact that I am in the final quarter of the game, BUT thank you Lord for calling me off the bench and into the game. A year ago today I was in NYC with the Parkinson Unity Walk with many of my friends from Patientslikeme.com. I was in a wheel chair and 65 pounds heavier. My hair was grey and for all intents and purposes, really thought I was headed rapidly to meet my maker face to face. As for last year, in April, I went to NYC, I was working on quilts for PDF, running three blogs, taking care of my 87 year old mom and decided to fall in love....I had my right hip replaced, got contacts, some new teeth and cloths and dropped out of sight to almost everyone. For this I my apologize......My team at the walk last year came in 13th place and collected around $15,000.00 for research....but as I changed within, I could no longer put all of me before the general public like before. A total makeover is a scary thing to go through, both inside and out and the continual fatigue and pain from Parkinson's never let up. No longer was it all about my chronic diseases and those who shared them with me.....it was me desperately trying to relearn how to love and be the healthiest I could be to recover and recover I did. I hit the road Monday with the old passion and then some...The fire is back in my eyes, hopefully for good . My love is the best, as are my friends who have helped me through this with wisdom and patience. Often they had to tell me things I didn't want to hear but I knew they were right. Tuesday I went to a symposium in Effingham , Ill. It was at the last minute and on dimincia and it was awesome. Dr Kuhn spoke at one of the breakouts and I made so many new friends....exchanged hugs and stories of encouragement. Wednesday we had our Lenten luncheon at church and once again it was awesome. Some of the things I wrote down in my notebook to remember were these: Jesus is the Lamb of God and the Good Sheppard. We can not hide from him. He can always find us...whether we think we need to be found or not. Our bodies are a temple, a house of prayer and we need to treat it as such. Our mouths need to be open and telling the story for all to hear. Jesus chose the downward demotion instead of up. He lowered himself to servitude and ultimately went to the cross for us. In all of this I had the thought. Who is keeping me from being the House of Prayer that my Lord wants? It's Me. I ask to be healed and he answered, "You Are.... Have faith, You are.' In this past eleven months, every sermon I heard, every passage I read in my "Gift Bible" was aimed toward my makeover and when I lost my way or did not understand he furnished me someone to explain and when I stub bled, I felt him giggle. Thursday I opened my email to the statement that the very first person I went to visit after being diagnose with PD was to have DBS surgery in St.Louis on Friday. Joanie is a woman of faith and a true inspiration. She knows her maker and is not afraid to let the world know who she is and what she thinks.......Praise the Lord for that. I hurried up and took off for STL with PLM's 2009 Unity Quilt, hoping to have it on her bed when she returned from surgery......Not knowing what I would find, I prayed the whole way there that I not cry when I saw her. There where 98 tornadoes that evening in our area BUT my Miss Joanie was perfect.....sitting up in bed and smiling. Alert and even walking back and forth in the hall. We talked about three hours and I left her with the quilt on her bed for comfort from all who had had a part in it. I left there ready to concur the world and what did I hear on my radio in the car? Bob Seger's "Beautiful Loser. A loser I am not, nor beautiful but I had set MY goals and they were not GOD'S goals. It's time to start listening better and as my grand kids say, "Get over it." The game is playing and we COULD WIN....Just get off the bench and join the game........love ya always Pokie

6 comments:

Ready2Run said...

Pokie, I stopped by to catch up on what is happening to you. I too have been "MIA" dealing with this MSA.
Regina

dakwrite said...

Pokie, you are amazing with all you have conquered this year. With my PD, fibromyalgia, arthritis, and constant high blood pressure this past couple months, I have been totally exhausted - - you know the kind, where you feel you're going to just dissolve into the floor if you don't lay down. So, I've spent a lot of time in bed. At age 55, this isn't cool. My heart, mind, and soul yearn to do things, but my body isn't willing. You've inspired me to lose weight (you look great, by the way!!) so I can pick up my feet again and begin a new journey. You are an inspiration, I'm sure not just to me but to many, many people! Keep on Keeping on, dear Pokie and if you have a chance, say a little prayer for me for I just can't seem to get moving. Your dr sounds great - - I think you and I are about the same distance from St. Louis.. Take care! Debbie (Dana O. from PLM)

Marian said...

Pokie, you are one of the most beautiful people I have ever met. I'm glad you feel that the fire is back in your eyes, but for me, it never dimmed.

love ya,
marian

Anonymous said...

Hey Pokie,


Have you heard about the Fox Trial Finder? It's a new tool to match pwp with clinical trials.

www.michaeljfox.org/foxtrialfinder

thank you - and good luck

Jean

www.pdplan4life.com

Findrxonline.com said...

Homeopathy is a system of medicine developed some 200 years ago by the German physician, Dr. Samuel Hahnemann. It is based on the principle of ‘like cures like’. By administering substances in a specially diluted form known as potencies, the remedy is supposed to stimulate the body’s innate healing ability to overcome the disease and restore the state of health. While a popular system of alternative medicine globally, homeopathy is a subject of much controversy as many members of the medical science field see homeopathic remedies as nothing more than a placebo.

Debbie K said...

I was going to go to bed after reading your other blog and tried twice to post on it, didn't think they went thru, wrote a short blurb on your FB page, then saw you had written here.
Oh, what a neat person you are and again, so much like me in many ways. I'm Dana O. on PLM, Debbie Pursley Korando on FB and have a blog here also but haven't written much there yet - - it's all in 'places in my house on bits and pieces of paper' and in this sometimes foggy PD/Fibromyalgia brain of mine.
Your writing has blessed me incredibly and I would love to meet you some day. We're really not that far away from each other, I live in Murphysboro, Illinois near Carbondale.
I'm gonna really go for now and try to get some precious sleep! For now, and always, take care and God bless, dear Pokie. I love your 'little girl in you' and I love who you are! Debbie

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