Showing posts with label ALSTDI. Show all posts
Showing posts with label ALSTDI. Show all posts
Sunday, July 15, 2012
Gods Day
Bath taken, hair curled, clothes layed out for church today and I cannot wait. Sundays are that special to me. We laugh and we hug I am with friends and God smiles. I have no pains or problems in his house. And though sometimes I cry, they are always tears of joy. He has taken me dowwn so many roads and always done so with a gentle hand in guidance. He has made so many changes in me in the last two years or should I say he has allowed me to face myself and make a change. Sometimes life scares me and when that happens I EAT. It's a buffer to keep the world away BUT God just keeps saying,"Come on, you can do it." and I have found in time with all I have in me...I can make it because I BELIEVE. For this and my many other blessings I am thankful and give thanks. Once again my rest is done. The journey must begin again . The map is in my hand. Through my resting and turmoil my friends have been right there, often just to listen to my questions......why, why, why is always the question....Though they are spread all over the United States, they are always only a phone call away....I am so blessed.
To all that read this rambling, I wish you health and happiness on this Sunday, GODS DAY......Love Pokie
Saturday, February 20, 2010
Inspirations.....
There is someone You have probably never met and neither have I and we will never get the chance now because her days on this earth were numbered and I am sure she is in heaven now. Mary Lou Krauseneck was a ALS patient the likes of which no one has ever known. While in the throws of her illness she wrote three volumes of cookbooks and donated all proceeds to the fueling of research at the ALS Therapy Developement Institute in Cambridge, Mass. Ok, you say, and go on. No, she netted $90,000.00 for research on her own while suffering from ALS. These books are no small achievements to be passed by...over 500 pages each. Called simply, "Recipes for Life" Volume One, Two and Three. From 2000 on the cookbooks gave Mary Lou a focus on something positive....something no one knew anything about, Lou Gehrig's Disease.Little did anyone know that these fund raising efforts were laying the ground work for the world class research engine that today is called ALS Therapy Development Institute (ALS TDI)
As I said, I never met Mary Lou but I did see a special on her on Dateline and had I had the chance we would have probably become great friends because I feel a emptiness in my heart for her. She had this miracle smile and she kept it coming no matter what.
In the front of my first cookbook is a quote by Luciano De Crescenzo: "We are each of us angels with only one wing, and we can fly only by embracing each other.". That just keeps going through my head, around and around.. I feel her embrace. I talked to her niece today, after I received my book, and thanked her for the pleasure and told her I would do all I could to spread the word on her aunt's work.
Your books may be ordered too. Your pleasure can start soon and your knowledge that you are making a difference on this earth will begin. ALSTDI CAN BE REACHED AT 215 First Street, Cambridge, Ma 02142 or 617-441.7200 or www.als.net get involved, make a difference and help us save our grandchildren from this and other neurological diseases...love Pokie
As I said, I never met Mary Lou but I did see a special on her on Dateline and had I had the chance we would have probably become great friends because I feel a emptiness in my heart for her. She had this miracle smile and she kept it coming no matter what.
In the front of my first cookbook is a quote by Luciano De Crescenzo: "We are each of us angels with only one wing, and we can fly only by embracing each other.". That just keeps going through my head, around and around.. I feel her embrace. I talked to her niece today, after I received my book, and thanked her for the pleasure and told her I would do all I could to spread the word on her aunt's work.
Your books may be ordered too. Your pleasure can start soon and your knowledge that you are making a difference on this earth will begin. ALSTDI CAN BE REACHED AT 215 First Street, Cambridge, Ma 02142 or 617-441.7200 or www.als.net get involved, make a difference and help us save our grandchildren from this and other neurological diseases...love Pokie
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