Good Morning World

I have so much to pull from today. I only hope I can do it justice and get the feelings and emotions that are parading around me across to you. The site is just jumping. The guys are writing poems about everything and exchanging phone numbers an we are off to NYC. Dixie will leave tomorrow by train and I will fly in Friday. I have lists posted everywhere as reminders to the coming event and there is one thing you might do to help us out. PRAY FOR SUNSHINE. The weather forecast came up 30% chance of rain and since we have 30 or more people wanting to eat lunch together were trying to put a picnic in the park on our schedule and get our food from the deli near by. W e have so much to say to each other and so little time to get it all done. I'm traveling with all the modern machinery to help me get and keep the word flowing. I know this is not the face of Parkinson's as most people see it but I assure you My disease is really fighting me this morning and I am determined that it will not win. My left arm will just barely move and when it does the pain is on the earthquake scale some where but I will get this done and love every moment of it.....Who came up with the idea that "Parkies" have to be totally sad all the time? Through interaction with my friends each day my mood is always better and I seem to be able to deal with the pain to a greater degree than ever before. I can no longer imagine what life would be like without them and hope to never have to find out. "when you do for someone else you forget your self" pokie I'll write more later and keep laughing ...it's so good for you

The Touch of Time

I couldn' t seem to figure out where to start tonight. I've spent all day changing and rearranging and being ever so thankful that 'pete" was watching my back as are several close friends on the outside.....I have worked hours trying to figure out things that come easy to most. I never worked this hard in college but I had many more brain cells then and I believe they may have been functioning at a better clip than now. During the day I was presented with this clip as always through random mishap: "I love those things that bear the touch of time, chips and all.... they're more beautiful than perfection." It seems since Parkinson's has arrived on my door step nothing has to do with perfecion. Daily chores are often erratic and mislead but for the first time in many years a very scattered plan is coming neatly together. As I mentioned last night I will be going to New York City in five days to be a walker in the Parkinson's Unity Walk in Central Park on team patientslikeme.com. I have never done anything like this but just decided either now or never...bought my plane tickets and made my hotel reservations all my self. now you may be saying so what? The what is...I'm from rural Illinois and St Louis is huge to me. I co- hab on a farm with some chicken, 3 horses, lots of cats and 2 dogs and a Nanny goat and twin kids,...PD and YOPA. and not to forget my mom who has Alzeihimers. She is 82 and I'm 61 and I believe are referred to as,"those crazy ladies on the hill". There use to be a 265 pound billy goat that lived up here with us, but his story will have to be told at a later time. when you put all these factors together, I am not a likely candidate for two days in the "Big Apple" on my own and I don't have any idea who will suffer more me or them. My imperfections, I'm sure will make for quite a show in Manhatten......but I just can not wait. I believe as of tonight on the site there will be 30 PLM-ERS meeting there Saturday morning.....Keeping in mind we have never seen each other and know each other through the site.....I wonder sometimes if they are afraid I'm going to show up in overhalls and mud boots. You never know about me but I rather doubt I will.....more tomorrow as we get more and more wound up.......POKIE "I love those things that bear the touch of time, chips and all....they're more beautiful than perfection."